An update on our week in Houston for all who want to know:
Y'all, this week has been bittersweet.
If I am honest, I am still processing it all and I am struggling a little bit. Lets be real, I am struggling a lot.
Anyways, let me just tell you the whole journey.
About a month ago, I was laying on the floor, literally sobbing and asking my Abba "why?"
Every doctor we had talked to had either turned me away or told me there was nothing more they could do for me. We had gotten no answers since I got diagnosed in 2015.
Cameron shared with our friend, Steve Murphy, the dead end we had hit and how hopeless we felt after a service about feeling helpless. Steve, being our family in Christ immediately wanted to help and connected us with another man in our church, Leeland. Leeland selflessly spent hours of his time to research and found us a doctor at M.D. Anderson in Houston. Although there was a waiting list to get into Dr. Slopis, we got an appointment the day we were referred.
Tuesday, May 16 we headed to Houston. Dr. Slopis was very knowledgeable and called for a series of MRI's to know more about what is going on inside of my body. Thursday I had one done on my lumbar spine. It was a very hard MRI for me because they had to put a wedge under my knee and I was in pain yet had to sit still. The second round of MRI's took three hours yet seemed easier because I was able to listen to worship music. The first song that came on was a song that has been very dear to my heart in this season. The words that stuck out in that moment were " I know You're with me to the very end" and "I still believe there is nothing more beautiful than the love you have for me." God was very near to me in those three hours. I prayed a lot. I cried some.
The results showed the mass is not only in my leg, but in my sciatic notch, in my foot and around (not on) my spine, So basically it covers my entire sciatic nerve. Finding out the mass is in more than just my leg is really hard for me. But, because they know this, they will be better able to treat me. Dr. Slopis believes that most of my pain is coming from the sciatic notch and the back of the knee. He believes surgery to remove part of the mass will relieve the pain. We will find out soon if the surgeon believes he can do this surgery. This is huge because we have been told the tumors are inoperable. Dr. Slopis says that my pain is his only concern and that other than that I am as healthy as a horse. All my bones and muscles look great. This is a blessing because many times the mass can hurt the bone and muscle growth.
We are thankful for God's goodness and care. We are thankful He is with us until the very end, We are thankful there is nothing more beautiful than the love He has for us. We are thankful for Steve, Leeland, Dr. Slopis and the medical staff at M.D. Anderson. I am thankful for a husband who takes such good care of me. Who drives me 16 hours and lets me nap. Who takes me on adventures to butterfly gardens and beautiful parks. Who feeds me tons of food. Who sits in a waiting room for countless hours and never complains, Who loves me so selflessly.
We are blessed. I ask for continued prayer that God's will be done in this. Please pray for my heart as I struggle through this. I am having a hard time in general and having a hard time being fearful of the surgery. Pray for my husband as well. Though oceans roar, my Daddy calms the winds and waves and makes my heart be still. Though the earth gives way. the mountains move into the sea, I know my God is in control.
I am in awe and feel so loved and blessed by the coverage of prayer and encouragement by so many of you. Thank you my brothers and sister in Christ, Thank you for fighting for me and praying for my healing.
Till the Very End - Will Reagan
Y'all, this week has been bittersweet.
If I am honest, I am still processing it all and I am struggling a little bit. Lets be real, I am struggling a lot.
Anyways, let me just tell you the whole journey.
About a month ago, I was laying on the floor, literally sobbing and asking my Abba "why?"
Every doctor we had talked to had either turned me away or told me there was nothing more they could do for me. We had gotten no answers since I got diagnosed in 2015.
Cameron shared with our friend, Steve Murphy, the dead end we had hit and how hopeless we felt after a service about feeling helpless. Steve, being our family in Christ immediately wanted to help and connected us with another man in our church, Leeland. Leeland selflessly spent hours of his time to research and found us a doctor at M.D. Anderson in Houston. Although there was a waiting list to get into Dr. Slopis, we got an appointment the day we were referred.
Tuesday, May 16 we headed to Houston. Dr. Slopis was very knowledgeable and called for a series of MRI's to know more about what is going on inside of my body. Thursday I had one done on my lumbar spine. It was a very hard MRI for me because they had to put a wedge under my knee and I was in pain yet had to sit still. The second round of MRI's took three hours yet seemed easier because I was able to listen to worship music. The first song that came on was a song that has been very dear to my heart in this season. The words that stuck out in that moment were " I know You're with me to the very end" and "I still believe there is nothing more beautiful than the love you have for me." God was very near to me in those three hours. I prayed a lot. I cried some.
The results showed the mass is not only in my leg, but in my sciatic notch, in my foot and around (not on) my spine, So basically it covers my entire sciatic nerve. Finding out the mass is in more than just my leg is really hard for me. But, because they know this, they will be better able to treat me. Dr. Slopis believes that most of my pain is coming from the sciatic notch and the back of the knee. He believes surgery to remove part of the mass will relieve the pain. We will find out soon if the surgeon believes he can do this surgery. This is huge because we have been told the tumors are inoperable. Dr. Slopis says that my pain is his only concern and that other than that I am as healthy as a horse. All my bones and muscles look great. This is a blessing because many times the mass can hurt the bone and muscle growth.
We are thankful for God's goodness and care. We are thankful He is with us until the very end, We are thankful there is nothing more beautiful than the love He has for us. We are thankful for Steve, Leeland, Dr. Slopis and the medical staff at M.D. Anderson. I am thankful for a husband who takes such good care of me. Who drives me 16 hours and lets me nap. Who takes me on adventures to butterfly gardens and beautiful parks. Who feeds me tons of food. Who sits in a waiting room for countless hours and never complains, Who loves me so selflessly.
We are blessed. I ask for continued prayer that God's will be done in this. Please pray for my heart as I struggle through this. I am having a hard time in general and having a hard time being fearful of the surgery. Pray for my husband as well. Though oceans roar, my Daddy calms the winds and waves and makes my heart be still. Though the earth gives way. the mountains move into the sea, I know my God is in control.
I am in awe and feel so loved and blessed by the coverage of prayer and encouragement by so many of you. Thank you my brothers and sister in Christ, Thank you for fighting for me and praying for my healing.
Till the Very End - Will Reagan
Kacey! Thank you so much for this post & know we will continue to pray with you! Do keep us informed!! Love you, girl!!♥️
ReplyDeleteLove you!
DeleteWow this truly moved me... you are THE strongest woman I know!! You and Cameron can get through anything. I'm so happy you have such a sweet and loving husband to help you through this time. I pray that the surgery takes the pain away! I love you!!
ReplyDelete